Join us on May 26, 2019 at 9AM for the upcoming One SMALL Step walk, hosted by PWS mom and research advocate, Rochelle Chilcote!
“Welcome to our ONE SMALL STEP fundraiser for Sadie and her fellow Prader-Willi Friends!
Please join us for a fun FIELD DAY!!
We will be having a 1mile fun run followed by some fun field games, including ring toss and a potato sack race!
We will also have a bounce house and face painting.
Registration is free to attend and in hopes of raising awareness for Prader-Willi Syndrome, T-shirts will be available for purchase as well as other great goodies! If you can’t make it out to this event, please consider donating to help raise awareness and funding for the Foundation for Prader-Willi Research. This invaluable organization has given hope to so many of us parents when we needed it. Their research and outreach has enriched lives of all Prader-Willi individuals and their family.
We look forward to seeing you and your family for this fun filled morning supporting all of our wonderful Prader-Willi individuals.”
You can RSVP today by registering at http://act.fpwr.org/newportnews2019
Can’t make it to the event but wish to donate? You can donate at the link above!
*100% of the proceeds from One SMALL Step supports PWS research through FPWR. The mission of FPWR is to eliminate the challenges of Prader-Willi syndrome through the advancement of research and directed therapeutic developments. High-quality research will lead to more effective treatments for our loved ones. By working together, we intend to free our loves ones from the burdens of PWS, allowing them to lead full and independent lives.